Empowering Epilepsy
Patient Education Program
What is the Empowering Epilepsy Patient Education Program?
Often, people with epilepsy are diagnosed with a specific seizure type(s), given a brief overview of their diagnoses, prescribed an anti-seizure medication, and sent on their way.
Once they leave their doctor's office, there are many unknowns.
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They never know:
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When a seizure will take place
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How loved ones can administer effective seizure first aid
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How to manage their medication side effects
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How to educate people in their lives about epilepsy and seizures
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How to empower their lives while living with this often debilitating chronic disease
Empowering Epilepsy has created a new Patient Education Program to educate newly diagnosed people with epilepsy, people living with refractory seizures, and potential surgical candidates how to better manage their seizures, provide their epilepsy specialists with the data they need to make a more accurate diagnosis and treatment plan, and improve their overall quality of life.
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When an epilepsy specialist diagnoses a person with epilepsy, we encourage doctors to refer those newly diagnosed people with epilepsy to Empowering Epilepsy for our Patient Education Program.
Our Empowering Epilepsy Patient Education Program will be used to educate people with epilepsy about their specific diagnosis and treatment plan prescribed by their epileptologist. Educational content has been written by some of the top doctors, who specialize in epilepsy and seizures, from across the United States.
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Participants will meet one on one with Empowering Epilepsy's Founder, Executive Director, and Epilepsy Survivor Leigh Goldie, M.Ed., either for an hour in person at Empowering Epilepsy's Headquarters in Beachwood, Ohio, or virtually via Zoom. They will receive diagnosis specific patient educational inserts placed in our Patient Education Folder.
This will help them and their loved ones more about their seizure type, specific prescribed anti-seizure medication with information from the pharmaceutical companies that develop the medications, as well as proactive steps and strategies they can take to help empower their lives. They can also use this to better educate people in their daily lives, as there is so much more to the epilepsy diagnosis than "just the seizures."
This program has been made possible by the generous support of the following partners:
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Charles L. Shor Foundation
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The Charles R. Jelm Charitable Fund
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Tana Alexander - In Loving Memory of Robert Shanklin
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The Higley Fund of the Cleveland Foundation
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The Sam J. Frankino Foundation
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The Leonard Krieger Fund of the Cleveland Foundation
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The Bicknell Fund
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The Samuel H. and Maria Miller Foundation
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The Leon and Gloria Plevin Family Foundation
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The Helen F. and Louis Stolier Family Foundation
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“....thank you for sharing valuable information on epilepsy. Your insights will be instrumental in helping me communicate effectively with medical professionals, especially Dr. A. Thanks to your guidance, I feel more confident navigating discussions and exploring treatment options. Thank you for your generosity and support."
Eric
Our Authors:
Top epilepsy specialists in the country
Adult Neuropsychologist at Cleveland Clinic Epilepsy Center
Cleveland Clinic Epilepsy Center
Neurologist at UCSF
Pediatric Epileptologist, Cleveland Clinic Epilepsy Center
Brown University / Rhode Island Hospital
Adult Epileptologist and Executive Vice Chancellor and Provost - UCSF
Pediatric Epileptologist at Cleveland Clinic and Leigh Goldie, M.Ed.
Adult Epileptologist at Cleveland Clinic Epilepsy Center
Physician Assistant, The University of Texas Health Science Center Pediatric Epilepsy Program
Epileptologist and Medical Director of Epilepsy, Summa Health Comprehensive Epilepsy Center
Adult Epileptologist and Behavioral Neurologist, Brigham and Women’s Hospital, Harvard Medical School, Boston, Massachusetts
(formerly Pediatric Director of Epilepsy at UH RBCH) Division Chief of Pediatric Neurology at New York Presbyterian Brooklyn Methodist Hospital
Pediatric Psychologist at Akron Children's Hospital
