For those looking to learn more about epilepsy, here is Empowering Epilepsy’s recommended reading list. With many stigmas and incorrect information about epilepsy, reading more will help you understand what is happening before, during and after a seizure and how epilepsy effects life in a variety of ways.
100 Questions & Answers About Your Child’s Epilepsy by Anuradha Singh
A Childhood With Epilepsy: Growing Up the Hard Way! by Abby Adams
A Smell of Burning: The Story of Epilepsy by Colin Grant – One day Colin Grant’s teenage brother Christopher failed to emerge from the bathroom. His family broke down the door to find him unconscious on the floor. None of their lives were ever the same again. Christopher was diagnosed with epilepsy. A Smell of Burning tells the remarkable story of this strange and misunderstood disorder. How certain people, at a particular moment in their life, start to suffer seizures, often preceded by an aura, of which a smell of burning is one of the most common. For many years epilepsy was associated with mental illness or even possession by devils. People with epilepsy were forbidden to marry or have children. Many became victims of Nazi eugenics programmes. To this day many people with epilepsy – sixty million worldwide – still live in fear of exposure. Grant’s book traces the history of the condition and the pioneering doctors whose extraordinary breakthroughs finally helped gain an understanding of how the brain works. He tells the stories of famous people with epilepsy like Julius Caesar, Joan of Arc, Fyodor Dostoevsky and Vincent Van Gogh, and through the tragic tale of his brother, he considers the effect of epilepsy on his own life.
Becky the Brave by Laurie Lears – a picture book to help children better understand epilepsy.
The Causes of Epilepsy: Common and Uncommon Causes in Adults and Children (Cambridge Medicine) by Simon D. Shorvon, Frederick Andermann and Renzo Guerrini
Childhood Epilepsy: Management from Diagnosis to Remission by Richard Appleton and Peter Camfield
Children with Epilepsy (Epilepsy Advice and Information) by Epilepsy Action
Diet for Seizures: One Child’s Journey by Michael J Koski
Epilepsy: A Patient and Family Guide by Orrin Devinsky, MD
Epilepsy 199 Answers – A Doctor Responds to his Patients by Andrew N. Wilner
Epilepsy Explained: A Book for People Who Want to Know More by Markus Reuber MD PHD MRCP, Christian E Elger MD PHD MRCP, and Steven C Schachter MD
Epilepsy in Children: What Every Parent Needs to Know by Orrin Devinsky, MD
Epilepsy In Our Lives: Women Living with Epilepsy (Brainstorms) by Kaarkuzhali Babu Krishnamurthy, Deborah T. Combs-Cantrell and Steven C. Schachter
Epilepsy – A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References Icon Health Publications (Author)
Epilepsy on Our Terms: Stories by Children with Seizures and Their Parents (Brainstorms) by Georgia D. Montouris, John M. Pellock and Steven C. Schachter – Gain insight as you read the stories of women living with epilepsy– told in their own words. Women discuss the impact of epilepsy on their roles as mothers, wives, and individuals, and express their concerns about how epilepsy will affect pregnancy outcome, the health of their babies, and parenting. They share candidly how epilepsy impacts family planning, fertility and sexuality.
Epilepsy: A Patient and Family Guide – 2008 by Orrin Devinsky M.D.
Epilepsy You’re Not Alone: How to Cope with the Disorder by Stacey Chillemi
Facing Me: Breaking the Bonds of Seizure Confinement; A Journey in Faith and Restoration by Stephanie S. Sawyer
Good Morning Beautiful: Winning the battle over seizures by Paulette George
Growing Up with Epilepsy: A Practical Guide for Parents by Lynn Bennett Blackburn
Karen’s Epilepsy by Elizabeth MD Baltaro: Written and illustrated by a high school student with epilepsy, Karen’s Epilepsy is a 28-page story about a girl with complex-partial seizures.
Keto Kid by Deborah Snyder
The Ketogenic Diet: A Treatment for Children and Others with Epilepsy by John Mark Freeman
Let’s Learn With Teddy About Epilepsy by Dr. Yvonne Zelenka
Meeting Special Needs: A Practical Guide to Support Children with Epilepsy by Rachel Baker and Cathy Hughes
Mighty Mike Bounces Back: A Boy’s Life with Epilepsy by Robert Skead and Mike Simmel – Mighty Mike didn’t know how mighty he was…until the day his dad brought home a basketball. Mike has epilepsy. He worries about having seizures at school and being different from his friends. But when he starts playing basketball, Mike uncovers a positive way to calm his mind, improve his health, and bounce back from adversity. Included is an extensive, kid-friendly resource section with information on handling seizures, feeling different, and living with worry that may come with epilepsy.
Mommy, I Feel Funny! A Child’s Experience with Epilepsy by Danielle M. Rocheford
My Mommy Has Epilepsy by Stacey Chillemi
Orchestra In Our Brain by Cynthia Fabian, Daniel Stevens
Partial Seizure Disorders: Help for Patients and Families by Mitzi Waltz
SEIZE HOPE: Just a Brainstorm on an Otherwise Sunny Day by Mary Ady-Fontaine and R. Nicolle Matthews PhD
Seizures and Epilepsy in Childhood: A Guide (Johns Hopkins Press Health Book)
[Paperback] by John M. Freeman (Author), Eileen P. G. Vining (Author), Diana J. Pillas (Author) The award-winning Seizures and Epilepsy in Childhood is the standard resource for parents in need of comprehensive medical information about their child with epilepsy. Now in its third edition, this highly praised book has been thoroughly revised and updated to reflect the latest approaches to the diagnosis and treatment of epilepsy in childhood, including the use of the ketogenic diet as a treatment for children who either do not respond to traditional drug therapy or who suffer intolerable side effects from medications.
In addition to providing up-to-date information about new diagnostic techniques as well as new drugs, diet, and surgical treatments, the authors have included a chapter addressing routine health care for children with epilepsy and a new chapter on complementary and alternative therapies. Also new to this edition are discussions of the progress made in the evaluation for surgery, a chapter on insurance issues, and a section detailing additional resources.
“No child’s life should be defined by seizures. If we understand how the brain works, what happens during seizures, and how to cope with epilepsy, we can overcome the mythology of epilepsy and fight society’s prejudices, allowing every child with epilepsy to reach his or her full potential.”—From Seizures and Epilepsy in Childhood
Seizure Free : From Epilepsy to Brain Surgery, I Survived, and You Can, Too! Paperback by Leanne Chilton
Shaken By The Silence by Heather Hackett – a story about a teen living with epilepsy.
Supporting Children with Epilepsy by Hull Learning Services
Taking Seizure Disorders to School: A Story About Epilepsy by Kim Gosselin:
This beautifully illustrated and fun-to-read storybook simplifies and normalizes a complicated childhood condition. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. In addition, children whose conditions set them apart as being different begin to feel accepted and safe.
The Great Katie Kate Explains Epilepsy by M. Maitland DeLand- a book to help children better understand epilepsy.
The Islands at the End of the World by Austin Aslan – (Fiction) In this fast-paced survival story set in Hawaii, electronics fail worldwide, the islands become completely isolated, and a strange starscape fills the sky. Leilani and her father embark on a nightmare odyssey from Oahu to their home on the Big Island. Leilani’s epilepsy holds a clue to the disaster, if only they can survive as the islands revert to earlier ways.
The Last Book in the Universe by Rodman Philbrick – (Fiction) This fast-paced action novel is set in a future where the world has been almost destroyed. It’s the story of a teenager with epilepsy nicknamed Spaz, who begins the heroic fight to bring human intelligence back to the planet. In a world where most people are plugged into brain-drain entertainment systems, Spaz is the rare human being who can see life as it really is. When he meets an old man called Ryter, he begins to learn about Earth and its past. With Ryter as his companion, Spaz sets off an unlikely quest to save his dying sister — and in the process, perhaps the world.
Treating Epilepsy Naturally : A Guide to Alternative and Adjunct Therapies Paperback by Patricia Murphy
Wyllie’s Treatment of Epilepsy: Principles and Practice by Elaine Wyllie MD, Gregory D. Cascino MD FAAN, Barry E. Gidal PharmD and Howard P. Goodkin MD PhD